About FSHD Canada Foundation
Shanon

Shanon

Spruce Grove, AB

I was a diagnosed at the age of 13 (1983). Neither of my parents have nor carry the gene. There is no family history. When I was 23, I had a son and he was then diagnosed at age 3 however I knew immediately at birth he had fshd. We have both struggled to adapt even year to the ongoing weakness but take one day at a time.

https://twitter.com/#!/FSHDCanada/ http://www.facebook.com/pages/FSHD-Canada/331378503625267 /contact Suite 201, 1100 1st St. SE Calgary, Alberta T2G 1B1 403.470.0141 neil.camarta@fshd.ca