Unite to find a cure
Chip Wilson, founder of lululemon athletica and SOLVE FSHD, talks about living with FSHD, Project Mercury, and World FSHD Day.
Srideep Dey
Kitchener, ON
I was diagnosed with fshd at the age of 10, now I'm 23. I also face the same difficulties, among which climbing staircase is the worst, and I am scared…
Read MoreCarden Wyckoff
Georgia, USA
When Carden Wyckoff was 9 years old, we found out she had a form of muscular dystrophy known as FSH (facioscapulohumeral). Over the course of the last 14 years, this…
Read MoreKeith Martin
Vancouver, BC
I was diagnosed with FSHD in 2005, and was devastated when I got the news. Very active as a young man, I virtually stopped playing my favourite sports because seeing…
Read MoreCraig’s Story
Kelowna, BC
Somebody recently asked me "what it's like to live with FSHD?". I gave them the best answer I could: "Physically, it's like gravity is being turned up on you. Everything…
Read MoreNeil’s Christmas Story
Calgary, AB
My contact information is posted on the FSHD Canada Foundation website — so I get a lot of emails. Most are from Canadians — but not all. Just before Christmas…
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