About FSHD Canada Foundation

FSHD clinical trials are coming to Canada – get registered here: Canadian Neuromuscular Disease Registry

Funded Research

Please note that any funds granted from the FSHD Canada Foundation cannot be used to cover more than ten percent (10%) of overhead costs.

Identify Biomarkers for FSHD Using Omics Approaches

Investigator: Yi-Wen Chen, Ph.D. (Children’s Research Institute in Silver Spring, Maryland) Biomarkers are biological changes that can be used as indicators of physiological and disease states. Biomarkers can be valuable…

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Stryka-001 treatment in the FSHD-like mouse model

Investigator: Dean Burkin, PhD, and Peter Jones, PhD (University of Nevada, Reno School of Medicine) This is a project to validate the efficacy of a potential drug therapy for FSHD…

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A Xenograft Model of FSHD for Testing Therapeutics

Investigator: Robert J Bloch PhD, Professor of Physiology
 at the University of Maryland Facioscapulohumeral muscular dystrophy (FSHD) affects 1 in approximately 15,000 individuals worldwide. One of the obstacles in developing treatments…

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Developing LNA-based therapy for FSHD

Investigators: • Yi-Wen Chen Children’s National Health System (Washington DC) • Toshifumi Yokota University of Alberta Faculty of Medicine and Dentistry (Alberta, Canada) Yi-Wen Chen and Toshifumi Yokota are investigating one…

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Facio Therapies

Facio Therapies (Facio-therapies.com) is a company based in the Netherlands that is focused on finding a cure for FSHD. Facio have screened over 34,000 small molecule compounds, and obtained over…

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FSHD myofibers cultured from human xenografts

FSH Muscular Dystrophy (FSHD) affects 1 in approximately 8,300 individuals worldwide. One of the obstacles in developing treatments for FSHD is the lack of a small animal model of the…

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