About FSHD Canada Foundation

FSHD clinical trials are coming to Canada – get registered here: Canadian Neuromuscular Disease Registry

Latest News
Sep 24

Help Shape the Future of FSHD Care: Your Voice Matters

Help Shape the Future of FSHD Care: Your Voice Matters People living with FSHD are...

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Sep 24

FDA Clears Next Step for Forazapadin in FSHD

FDA Clears Next Step for Forazapadin in FSHD The news in brief Satellos Bioscience, a...

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Sep 2

Scholar Rock Has Received FDA Fast Track Status for Apitegromab

Scholar Rock Has Received FDA Fast Track Status for Apitegromab More encouraging news for the...

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Aug 26

New Resource: Canadian Clinical Trial Search Portal

New Resource: Canadian Clinical Trial Search Portal Health Canada has developed a new resource for...

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Jul 10

Two FSHD Muscle Regeneration Compounds Enter Clinical Trials This Summer

Two FSHD Muscle Regeneration Compounds Enter Clinical Trials This Summer The momentum in FSHD muscle...

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May 11

BetterLife FSHD Canada Has Launched!

BetterLife FSHD Canada Has Launched! BetterLife FSHD Canada, a new digital health platform developed in...

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Apr 13

In Memoriam: Phil Ponting, Chairman of the Board

In Memoriam: Phil Ponting, Chairman of the Board It is with profound sadness that the...

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Apr 10

Follow-up: All Canada Chapters Virtual Meeting – February 5, 2026

Follow-up: All Canada Chapters Virtual Meeting – February 5, 2026 Thank you to our Canadian...

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Apr 6

Canadian Tax Credits for FSHD Patients

Canadian Tax Credits for FSHD Patients It’s tax time – and here are a couple...

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