About FSHD Canada Foundation

FSHD clinical trials are coming to Canada – get registered here: Canadian Neuromuscular Disease Registry

Latest News
May 11

BetterLife FSHD Canada Has Launched!

BetterLife FSHD Canada Has Launched! BetterLife FSHD Canada, a new digital health platform developed in...

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Apr 13

In Memoriam: Phil Ponting, Chairman of the Board

In Memoriam: Phil Ponting, Chairman of the Board It is with profound sadness that the...

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Apr 10

Follow-up: All Canada Chapters Virtual Meeting – February 5, 2026

Follow-up: All Canada Chapters Virtual Meeting – February 5, 2026 Thank you to our Canadian...

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Apr 6

Canadian Tax Credits for FSHD Patients

Canadian Tax Credits for FSHD Patients It’s tax time – and here are a couple...

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Aug 19

New Clinical Study Underway: Fortetropin

New Clinical Study Underway: Fortetropin  FSHD Canada Foundation is pleased to announce the launch of...

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Aug 18

Follow-up: FSHD 360 in Vancouver – June 1, 2025

Follow-up: FSHD 360 in Vancouver – June 1, 2025 Powering the Path Forward through Knowledge...

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Jul 22

2025 Walk & Roll to Cure FSHD

2025 Walk & Roll to Cure FSHD An initiative from the FSHD Society, the Walk &...

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Jul 22

Follow-Up: Painting Canada Orange for World FSHD Day

Follow-Up: Painting Canada Orange for World FSHD Day In celebration of World FSHD Day we...

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Jul 22

Welcome Quebec Chapter!

Welcome Quebec Chapter! Local Chapters | Connect. Support. Inform. Strengthen. The brain child of the...

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https://twitter.com/#!/FSHDCanada/ http://www.facebook.com/pages/FSHD-Canada/331378503625267 /contact Suite 201, 1100 1st St. SE Calgary, Alberta T2G 1B1 403.470.0141 neil.camarta@fshd.ca