About FSHD Canada Foundation

FSHD clinical trials are coming to Canada – get registered here: Canadian Neuromuscular Disease Registry

Latest News
Jul 10

Two FSHD Muscle Regeneration Compounds Enter Clinical Trials This Summer

Two FSHD Muscle Regeneration Compounds Enter Clinical Trials This Summer The momentum in FSHD muscle...

Read More
May 11

BetterLife FSHD Canada Has Launched!

BetterLife FSHD Canada Has Launched! BetterLife FSHD Canada, a new digital health platform developed in...

Read More
Apr 13

In Memoriam: Phil Ponting, Chairman of the Board

In Memoriam: Phil Ponting, Chairman of the Board It is with profound sadness that the...

Read More
Apr 10

Follow-up: All Canada Chapters Virtual Meeting – February 5, 2026

Follow-up: All Canada Chapters Virtual Meeting – February 5, 2026 Thank you to our Canadian...

Read More
Apr 6

Canadian Tax Credits for FSHD Patients

Canadian Tax Credits for FSHD Patients It’s tax time – and here are a couple...

Read More
Aug 19

New Clinical Study Underway: Fortetropin

New Clinical Study Underway: Fortetropin  FSHD Canada Foundation is pleased to announce the launch of...

Read More
Aug 18

Follow-up: FSHD 360 in Vancouver – June 1, 2025

Follow-up: FSHD 360 in Vancouver – June 1, 2025 Powering the Path Forward through Knowledge...

Read More
Jul 22

2025 Walk & Roll to Cure FSHD

2025 Walk & Roll to Cure FSHD An initiative from the FSHD Society, the Walk &...

Read More
Jul 22

Follow-Up: Painting Canada Orange for World FSHD Day

Follow-Up: Painting Canada Orange for World FSHD Day In celebration of World FSHD Day we...

Read More
https://twitter.com/#!/FSHDCanada/ http://www.facebook.com/pages/FSHD-Canada/331378503625267 /contact Suite 201, 1100 1st St. SE Calgary, Alberta T2G 1B1 403.470.0141 neil.camarta@fshd.ca