About FSHD Canada Foundation

FSHD clinical trials are coming to Canada – get registered here: Canadian Neuromuscular Disease Registry

Funded Research

Please note that any funds granted from the FSHD Canada Foundation cannot be used to cover more than ten percent (10%) of overhead costs.

Exploiting Genome Editing Technology 2015

FSHD Canada and the FSH Society are jointly funding a project called “Exploiting Genome Editing Technologies,” led by Michael Kyba, PhD, of the University of Minnesota. The two FSHD organizations…

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FSHD Canada and Friends of FSH Research Team Up to Fund Three Innovative Research Projects.

FSHD Canada has partnered with Friends of FSH Research to solicit, review, and fund three exciting projects that will accelerate our progress towards a treatment or cure for FSH muscular…

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FSHD Canada Co-Funds Two Very Promising Research Projects in Collaboration with the Friends of FSH Research

We are excited to announce that FSHD Canada has co-­funded two very promising research projects in collaboration with the Friends of FSH Research. Donations like yours have contributed towards accelerating…

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Exploiting genome editing technology to modify and regulate the FSHD disease locus

Recent discoveries of DNA-binding factors have opened up tremendous new possibilities in genome editing. Through the grant, this study will take advantage of and leverage an existing research program in…

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Generating FSHD-affected human muscle in mice for testing therapeutic strategies

Great advances have been made to understand the cause of FSHD, and the mechanism behind the disease. Currently, researchers indicate that improper expression of DUX4 in FSHD-affected muscle is the…

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Identification of Chromatin Modifier Genes Important for DUX4 Silencing

Facioscapulohumeral Muscular Dystrophy is a dominantly inherited myopathy associated with chromatin relaxation of the D4Z4 macrosatellite array on chromosome 4. DUX4 is encoded within each unit of the D4Z4 array…

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