BetterLife Canada

Budget

C$200,000

Lay Abstract

Project Timeline:

1 Year

Investigator:

FSHD Innovation HUB

BetterLife is a patient-reported FSHD health data platform.

BetterLife provides FSHD patients with:

• Symptom Tracking: Monitor your health and track symptoms over time, gaining insights into your personal health journey.
• Customized Resources: Access a wealth of information and support tailored specifically to your needs and symptoms.
• Clinical Trial Matching: Discover research studies and clinical trials for which you may be eligible, opening doors to new treatment opportunities.
• Secure Data Contribution: Safely share your health data with approved researchers, knowing your privacy is protected.

The BetterLife platform was developed in Alberta for the FSHD Society in the United States.

This project will bring BetterLife to Canada – with roll-out targeted for late 2025.