About FSHD Canada Foundation

FSHD clinical trials are coming to Canada – get registered here: Canadian Neuromuscular Disease Registry

Funded Research

Please note that any funds granted from the FSHD Canada Foundation cannot be used to cover more than ten percent (10%) of overhead costs.

Muscle Regeneration: EPIRIUM

Test period: February 2024 – March 2024 Investigator: Epirium: Micah Webster, PhD Myologica: Ramzi Khairallah, PhD Lay abstract Muscle Regeneration Projects We don’t have a cure for FSHD – yet.…

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Muscle Regeneration: ECM/MBV

Test period: November 2023 to January 2024 Investigator: University of Pittsburgh: Stephen Badylak, PhD & George Hussey, PhD Myologica: Ramzi Khairallah, PhD Lay abstract Muscle Regeneration Projects We don’t have…

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Muscle Regeneration: SATELLOS

Test period: December 2023 – March 2024 Investigator: Satellos: Phil Lambert, PhD Myologica: Ramzi Khairallah, PhD Lay abstract Muscle Regeneration Projects We don’t have a cure for FSHD – yet.…

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Muscle Regeneration: ALKAHEST

Test period: January 2023 – March 2024 Investigators: Alkahest: Benson Lu, PhD & Annette Tennstaedt, PhD Myologica: Ramzi Khairallah, PhD Lay abstract Muscle Regeneration Projects We don’t have a cure…

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FSHD-Like Mini-PIG MRI Project

Test period: The bulk of this project will be completed in 2024. Investigator: Peter Jones, PhD (University of Nevada, Reno) Lay abstract The Peter and Takako Jones Lab is in…

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Effect of Matrix Bound Nanovesicles in a rodent model of FSHD: Histomorphologic Analysis

Test period: August 1, 2023 to January 31, 2024 Investigators: George Hussey, PhD and Stephen F. Badylak, DVM, PhD, MD The proposed studies will evaluate the immune and myogenic cell…

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