About FSHD Canada Foundation

FSHD clinical trials are coming to Canada – get registered here: Canadian Neuromuscular Disease Registry

Funded Research

Please note that any funds granted from the FSHD Canada Foundation cannot be used to cover more than ten percent (10%) of overhead costs.

Calgary FSHD Clinical Innovation HUB

Test period: One Year Investigator: Dr. Lawrence Korngut, University of Calgary Lay abstract The really good news for FSHD patients is that cures are coming – and fast. And FSHD…

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Follistatin Mini-Pig Project

Test period: Six Months Investigator: Dr. Peter Jones, University of Nevada Reno Lay abstract Over the years FSHD Canada has supported the development of Dr. Jones’ FSHD mini-pigs. Well –…

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Muscle Regeneration – 12 Shots on Goal

Test period: February 2024 – December 2024 Investigator: Myologica: Ramzi Khairallah, PhD Lay abstract Muscle Regeneration Projects We don’t have a cure for FSHD – yet. But that shouldn’t stop…

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Muscle Regeneration: EPIRIUM

Test period: February 2024 – March 2024 Investigator: Epirium: Micah Webster, PhD Myologica: Ramzi Khairallah, PhD Lay abstract Muscle Regeneration Projects We don’t have a cure for FSHD – yet.…

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Muscle Regeneration: ECM/MBV

Test period: November 2023 to January 2024 Investigator: University of Pittsburgh: Stephen Badylak, PhD & George Hussey, PhD Myologica: Ramzi Khairallah, PhD Lay abstract Muscle Regeneration Projects We don’t have…

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Muscle Regeneration: SATELLOS

Test period: December 2023 – March 2024 Investigator: Satellos: Phil Lambert, PhD Myologica: Ramzi Khairallah, PhD Lay abstract Muscle Regeneration Projects We don’t have a cure for FSHD – yet.…

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