About FSHD Canada Foundation

FSHD clinical trials are coming to Canada – get registered here: Canadian Neuromuscular Disease Registry

Funded Research

Please note that any funds granted from the FSHD Canada Foundation cannot be used to cover more than ten percent (10%) of overhead costs.

Muscle Regeneration Project – More Shots on Goal

Test period: 12 Months Investigator: Dr. Ramzi Khairallah, Myologica Lay abstract This project covers ongoing testing of potential muscle regeneration compounds on FSHD mice. So far – 7 Hits have…

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VASA Therapeutics Pre-Clinical Development

Project Timeline: 6 Months Investigator: VASA Therapeutics Lay abstract VASA has developed a compound that has proven successful in regenerating muscle in FSHD mice. This funding covers the next step…

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BetterLife Canada

Project Timeline: 1 Year Investigator: FSHD Innovation HUB BetterLife is a patient-reported FSHD health data platform. BetterLife provides FSHD patients with: Symptom Tracking: Monitor your health and track symptoms over time, gaining insights…

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Calgary FSHD Clinical Innovation HUB

Test period: One Year Investigator: Dr. Lawrence Korngut, University of Calgary Lay abstract The really good news for FSHD patients is that cures are coming – and fast. And FSHD…

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Follistatin Mini-Pig Project

Test period: Six Months Investigator: Dr. Peter Jones, University of Nevada Reno Lay abstract Over the years FSHD Canada has supported the development of Dr. Jones’ FSHD mini-pigs. Well –…

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Muscle Regeneration – 12 Shots on Goal

Test period: February 2024 – December 2024 Investigator: Myologica: Ramzi Khairallah, PhD Lay abstract Muscle Regeneration Projects We don’t have a cure for FSHD – yet. But that shouldn’t stop…

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