BetterLife FSHD Canada Has Launched!

BetterLife FSHD Canada, a new digital health platform developed in partnership with CNDR and the FSHD Canada Foundation, supports individuals living with facioscapulohumeral muscular dystrophy (FSHD) across Canada. The platform empowers users to track symptoms, better understand their health, and access personalized resources, while also contributing directly to research through secure data sharing with approved investigators. By integrating patient-reported data with CNDR infrastructure, BetterLife FSHD Canada aims to accelerate real-world evidence generation, support clinical trial matching, and advance the development of future therapies. Learn more and join at ca.BetterLifeFSHD.org or see the flyer below!