Follow-up: FSHD 360 in Vancouver – June 1, 2025

Powering the Path Forward through Knowledge and Community

FSHD 360 Regional Conferences bring you the latest in research, treatments, and daily disease management, all designed to help you take control of your health and future. These events are held across the North America and feature leading experts. Whether you are new to the FSHD community or want to learn about the latest updates in FSHD research, FSHD 360 Conferences are here to help you on your journey.

On June 1, 2025, the BC Chapter hosted their first ever FSHD 360 in Vancouver! Attendees heard from research and advocacy leaders in Vancouver and Seattle (WA), as well as from biopharmaceutical companies that are working on FSHD therapies. They also held a very successful and interesting panel discussion with FSHD patients. Topics included “BetterLife FSHD Comes to Canada”, ” Panel: Navigating Life with FSHD”, “Multidisciplinary Care for People with FSHD”, and “FSHD Clinical Research and Clinical Trials”.

These presentations were recorded and are now available for you to view at the YouTube link below. Enjoy!

Vancouver FSHD 360 – Recorded Presentations