About FSHD Canada Foundation

FSHD clinical trials are coming to Canada – get registered here: Canadian Neuromuscular Disease Registry

Funded Research

Please note that any funds granted from the FSHD Canada Foundation cannot be used to cover more than ten percent (10%) of overhead costs.

Muscle Regeneration: ALKAHEST

Test period: January 2023 – March 2024 Investigators: Alkahest: Benson Lu, PhD & Annette Tennstaedt, PhD Myologica: Ramzi Khairallah, PhD Lay abstract Muscle Regeneration Projects We don’t have a cure…

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FSHD-Like Mini-PIG MRI Project

Test period: The bulk of this project will be completed in 2024. Investigator: Peter Jones, PhD (University of Nevada, Reno) Lay abstract The Peter and Takako Jones Lab is in…

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Effect of Matrix Bound Nanovesicles in a rodent model of FSHD: Histomorphologic Analysis

Test period: August 1, 2023 to January 31, 2024 Investigators: George Hussey, PhD and Stephen F. Badylak, DVM, PhD, MD The proposed studies will evaluate the immune and myogenic cell…

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Matrix Bound Vesicles for the Treatment of DUX4-mediated Muscle Pathology

Investigators: Collaborative study between Dr. Michael Kyba (UMN) and Dr. Stephen Badylak (UPMC) This study will investigate the effects of treating muscle with GMP produced matrix-bound vesicles (MBVs) in the iDUX4pA/HSA…

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Phenotypic characterization of FSHD-like FLExDUX4 minipigs

Investigator: Peter L. Jones, PhD, University of Nevada, Reno School of Medicine All forms of FSHD are caused by misexpression of DUX4 (double homeobox protein 4) in skeletal muscles; thus, the…

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Matrix Bound Nanovesicles (MBV) as a Therapy for FSHD

Investigator: Dr. George Hussey, University of Pittsburgh Regenerative Medicine provides an alternative FSHD treatment strategy for promoting new tissue growth using Extracellular Matrix (ECM) bioscaffolds. ECM bioscaffolds serve as a biochemical…

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