About FSHD Canada Foundation

FSHD clinical trials are coming to Canada – get registered here: Canadian Neuromuscular Disease Registry

Your Stories

Unite to find a cure

Chip Wilson, founder of lululemon athletica and SOLVE FSHD, talks about living with FSHD, Project Mercury, and World FSHD Day.

Learn more about world FSHD day

Srideep Dey

Kitchener, ON

I was diagnosed with fshd at the age of 10, now I'm 23. I also face the same difficulties, among which climbing staircase is the worst, and I am scared…

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Spruce Grove, AB

I was a diagnosed at the age of 13 (1983). Neither of my parents have nor carry the gene. There is no family history. When I was 23, I had…

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John Mora

Toronto, ON

Good evening, my name is John. I was diagnosed with FSHD Muscular Dystrophy on January of 2015. Before my diagnosis I used to train MMA and kickboxing, live a normal…

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Midland, ON

Caydence grew up just like any other kid. We always knew she had kind of a funny smile so we brought it up at her doctor appointments, but it was…

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Carden Wyckoff

Georgia, USA

When Carden Wyckoff was 9 years old, we found out she had a form of muscular dystrophy known as FSH (facioscapulohumeral). Over the course of the last 14 years, this…

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Keith Martin

Vancouver, BC

I was diagnosed with FSHD in 2005, and was devastated when I got the news. Very active as a young man, I virtually stopped playing my favourite sports because seeing…

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Craig’s Story

Kelowna, BC

Somebody recently asked me "what it's like to live with FSHD?". I gave them the best answer I could: "Physically, it's like gravity is being turned up on you. Everything…

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Neil’s Christmas Story

Calgary, AB

My contact information is posted on the FSHD Canada Foundation website — so I get a lot of emails. Most are from Canadians — but not all. Just before Christmas…

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https://twitter.com/#!/FSHDCanada/ http://www.facebook.com/pages/FSHD-Canada/331378503625267 /contact Suite 201, 1100 1st St. SE Calgary, Alberta T2G 1B1 403.470.0141 neil.camarta@fshd.ca