About FSHD Canada Foundation

FSHD clinical trials are coming to Canada – get registered here: Canadian Neuromuscular Disease Registry

Your Stories

Srideep Dey

Kitchener, ON

I was diagnosed with fshd at the age of 10, now I'm 23. I also face the same difficulties, among which climbing staircase is the worst, and I am scared…

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Spruce Grove, AB

I was a diagnosed at the age of 13 (1983). Neither of my parents have nor carry the gene. There is no family history. When I was 23, I had…

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John Mora

Toronto, ON

Good evening, my name is John. I was diagnosed with FSHD Muscular Dystrophy on January of 2015. Before my diagnosis I used to train MMA and kickboxing, live a normal…

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Midland, ON

Caydence grew up just like any other kid. We always knew she had kind of a funny smile so we brought it up at her doctor appointments, but it was…

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Carden Wyckoff

Georgia, USA

When Carden Wyckoff was 9 years old, we found out she had a form of muscular dystrophy known as FSH (facioscapulohumeral). Over the course of the last 14 years, this…

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Keith Martin

Vancouver, BC

I was diagnosed with FSHD in 2005, and was devastated when I got the news. Very active as a young man, I virtually stopped playing my favourite sports because seeing…

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Craig’s Story

Kelowna, BC

Somebody recently asked me "what it's like to live with FSHD?". I gave them the best answer I could: "Physically, it's like gravity is being turned up on you. Everything…

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Neil’s Christmas Story

Calgary, AB

My contact information is posted on the FSHD Canada Foundation website — so I get a lot of emails. Most are from Canadians — but not all. Just before Christmas…

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https://twitter.com/#!/FSHDCanada/ http://www.facebook.com/pages/FSHD-Canada/331378503625267 /contact Suite 201, 1100 1st St. SE Calgary, Alberta T2G 1B1 403.470.0141 neil.camarta@fshd.ca